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Other possible complications might come up as well. Your doctor or your child’s doctor should carefully review any possible problems with you during your follow-up appointments.

For more information, see Late and Long-term Effects of Childhood Cancer Treatment.

If the cancer comes back

If the cancer does come back (recur) at some point, your treatment options will depend on where the cancer is located, what treatments you’ve had before, and your overall health.

Learn more in Understanding Recurrence.

Social and emotional health in children and families after cancer treatment

Most often, Ewing sarcoma develops in the teen and young adult years, a very complex time in a person’s life. Ewing sarcoma and its treatment can have a profound effect on how a person looks and how they view themselves and their body. It can also affect how they do some everyday tasks, including certain school, work, or recreational activities.

Some people may also have a hard time coping with being away from school, friends, and activities they enjoyed before cancer. These impacts are often greatest during the first year of treatment, but they can be long-lasting in some people.

Once treatment is finished, a few mental and emotional concerns can come up. Some of these might develop many years after treatment and can include:

• Dealing with physical changes that can result from the treatment
• Worries about the cancer returning or new health problems developing
• Feelings of resentment for having had cancer or having had to go through treatment or having health problems when others do not
• Feeling guilty for surviving cancer, when other friends with cancer did not
• Concerns about being treated differently or discriminated against (by friends, classmates, coworkers, employers, etc.)
• Concerns about dating, marrying, and having a family later in life

It is normal to have some anxiety or other emotional reactions after treatment, but feeling overly worried, depressed, or angry can affect many aspects of a young person’s growth. It can get in the way of relationships, school, work, and other aspects of life. With support from family, friends, other survivors, mental health professionals, and others, many people who have survived cancer can thrive despite the challenges they have had to face.

Parents and other family members, especially siblings, can also be affected, both emotionally and in other ways. Some common family concerns include financial stress, job loss, relationship stress, and worry about cancer returning. Social workers and other professionals at cancer centers can help families access help for these issues. Reach out to your cancer center for help when needed.

Learn more about helping people with Ewing sarcoma and their loved ones cope during and after treatment in Childhood Cancer.

Long-term follow-up guidelines

To help increase awareness of late effects and improve follow-up care of childhood cancer survivors throughout their lives, the Children’s Oncology Group (COG) has developed long-term follow-up guidelines for survivors of childhood cancers. These guidelines are used by your doctor to create a Survivorship Care Plan specific to your child’s treatment. They can help you know what to watch for, what screening tests should be done to look for problems, and how late effects can be treated.

Ask your child’s doctors about the COG survivor guidelines. You can also download them for free at the COG website: . The guidelines are written for health care professionals, but patient education on some late effects of treatment is available (as “Health Links”) on the site as well.

Learn more in Late and Long-term Effects of Childhood Cancer Treatment.