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Survivorship care focuses on the long-term wellbeing of people with a history of cancer and cancer treatment. This includes mental and physical health, as well as social and financial wellbeing. As you and your child work with your cancer care team after treatment, here are some things to keep in mind that might be helpful.

How will “going back to normal” feel?

During treatment, most parents and caregivers focus on getting through each day. After treatment, priorities shift as you and your child try to get back to a life that doesn’t revolve around cancer.

Many parents and caregivers are surprised by some of the feelings they experience when cancer treatment is finally over. You might have gotten used to the cancer care team, appointments, tests, medicines, and phone calls. You might have had family and friends supporting you with rides, meals, or other tasks.

People often assume everything should be great now that treatment has ended. However, many people report feeling lost or even abandoned. Going back to the life you led before cancer can be challenging. These feelings are common, normal, and nothing to be ashamed of.

What records of my child’s cancer and cancer treatment should I keep?

The two main documents you might receive after treatment are a treatment summary and a survivorship care plan (SCP).

What happens during survivorship care visits?

Survivorship care might also be called long-term or follow-up care. This care focuses on long-term wellbeing after cancer and cancer treatment. Survivorship care might be with some of the cancer care team your child had before. Or it might be with a clinic or team focused on long-term care of childhood cancer survivors. And it might be with your child’s primary care doctor.

Survivorship care will often include:

Monitoring and screening test recommendations

• Tests, exams, or scans to check for cancer recurrence
• Screening and surveillance for late and long-term physical, mental, emotional, and cognitive effects
• Monitoring for new second cancers. There might be specific conditions that the care team will want to screen for long-term depending on which cancer treatment was given.

Late effects education, prevention, and treatment

• Education and support for healthy lifestyles and to reduce health and cancer risk
  • Nutrition and physical activity recommendations
  • Information on sun safety and skin cancer prevention
  • Recommendations to limit or avoid substances such as alcohol or tobacco
  • Reminders for recommended immunizations, such as the HPV vaccine
  • Dental and vision care recommendations
  • Cancer screening recommendations
• Treatment of late and long-term effects or referrals to specialists

Support services

• Mental health and emotional support
• Help with financial and insurance issues
• If needed, referrals to specialists, rehabilitation, fertility testing or preservation services, or genetic counseling

Survivorship care resources

• :  Find clinical practice guidelines for preventing, recognizing, and managing long-term and late effects of cancer treatment, plus patient education handouts called Health Links.
• : Find a pediatric survivorship clinic near you.
• : Find your treatment summary and survivorship care plan, if your clinic uses this free tool.
• : Find survivorship resources, and store and share your survivorship care plan (SCP) with other healthcare providers using this patient-controlled digital health record.